Was starting your advocacy journey a hard
decision? Were you anxious and hesitant or were
you excited and ready to share your story? Tell us
how you chose to start advocating for your
I started sharing my story with Facebook posts to keep friends and family up to date. I had a blog, and when I had surgery approaching decided to use that so it was accessible to others too.
So I didn’t really think about it – it just happened. What I then realised is that there were lots of others out there sharing stories, and that there was a bigger audience than just friends and family. IBD is an invisible illness both in the sense that you can’t see it from the outside, but also it is not well known.
So from just falling into it, I am now excited about being an advocate, sharing my story and helping others.