A very lovely afternoon (apart from the roadworks)

On Saturday I journeyed to Birmingham for the Purple Wings Charity Conference. There was also a fundraising ball in the evening that I wasn’t attending, but I’ll come back to that later… If you have to go to Birmingham centre in the next little while I highly advise getting the train…

Purple Wings raises funds to award grants to IBD suffers and ostomates, to help them to regain their confidence, or fund some time with family after surgery. The conference was an opportunity to hear about the work of the last 12 months, launch the 2018 calendar, and hear from some individuals about their IBD and ostomy journeys.

There were also stalls from various stoma equipment manufacturers and distributors, bag cover creators and clothing companies, as well as the local Crohn’s & Colitis UK group and ia support branch.

The charity’s strap line  is ‘Recover, Adapt, Overcome’ and the founder, Lauren, is so driven to raise funds and help people to do just that. She was very humble throughout, giving the various speakers the lime light and a chance to share their experiences.

I didn’t take photos or video, and won’t try to capture the speakers words for you. Needless to say they were emotional and powerful, and I was sorry to miss the input from the evening speakers.

It was a bit like walking into Facebook come to life for a while, meeting and seeing people I have connected with or seen in various online groups, including former #IBDHour guest host Shell Lawes, the IBD & Ostomy Support Show girls (well three of them) James from The Toilet, Me & IBD and many others. It was nice to meet people in person rather than just online, and to be bale to have casual conversations about ostomy bag accessories!

You can find out more about the charity in this little video…

A couple of people asked me why I wasn’t staying for the evening ball, and I thought about it on the way home. It was partly about childcare, but mostly because when it was time to buy tickets and book rooms we just didn’t know what would be happening with my wound (18 months and counting). As it happens, it would have been possible wound wise, but it has prevented me doing so much – not because I am in pain, or in bed but because I might need professional intervention to do the dressing change. When things like that drag on and on (and on) you don’t realise how much it is holding you back – so that is the focus, get that wound healed (seeing consultant on Friday) – and then do the good stuff.

And maybe then next year I can share my story, and some poems at the Purple Wings Charity Ball…

 

One thought on “A very lovely afternoon (apart from the roadworks)

  1. Pingback: You can leave your hat on… | Gutless Dick

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