Here are the questions for tonight’s #IBDHour – follow on Twitter @IBDHour
Q1 Please introduce yourself (you can share your diagnosis if you wish) and say how you are today
Q2 Do you access any online groups for support – and what support do they offer?
Q3 Have you attended a real life group or event organised by an IBD organisation? If not, why not?
Q4 Is there a need for real life support groups? What would they look like?
Q5 @CrohnsColitisUK are clear they have local groups to raise awareness and fundraise, would you like them to offer more?
Q6 So much of life is online now – what is the benefit of real life contact?
Q7 What role should hospitals have in offering support? Should it just be to individuals or groups?
Here are the questions for this months IBD Hour!
Q1 Please introduce yourself (you can share your diagnosis if you wish) and share a positive from the last month
Q2 What has been your proudest achievement since your diagnosis?
Q3 IBD can be very negative – what do you do to stay positive?
Q4 When you are feeling down, have you got a ‘go to’ activity, food or drink to pick you up?
Q5 Have you got a person in your life who helps you remain positive?
Q6 For people who struggle to be positive, what advice would you give them?
Q7 Let’s finish with a positive thought, or something coming up for you in the next month
Do come and join us on Twitter at 8pm UK time on 15th June – search the #IBDHour
On Thursday 11th May I was a guest on The IBD & Ostomy Support Show, and you can view the show on YouTube if you missed it.
It was great to be able to add a male perspective to some of the ‘Ask anything’ questions, as well as share my story, experiences of immunosuppressants and talk about IBDHour (which returns on Thursday by the way).
Do check out the video, and don’t forget to like, comment and subscribe to help the girls build the following, and check out their blogs and social media too!
Louise – Crohn’s Fighting – Blog – FB – Instagram – Twitter
Rachel – Rocking2Stomas – Blog – FB – Instagram – Twitter
Stephie – Colitis2Ostomy – Blog – FB – Instagram – Twitter
The IBD & Ostomy Support Show has been going for about 7 weeks now – I wrote a quick review of the first episode. I am going to be a guest on the next episode this Thursday 11th May at 8pm – you can watch on YouTube.
I’ll be talking about IBDHour and my IBD journey, and the show has two themes – immunosuppressant and then an ‘Ask Anything’ section – you can ask questions in advance via the Facebook page and take part in the survey here.
I’m really looking forward to taking part, and hope you can check it out!
So it’s nearly two weeks since the first #IBDHour and I am still really buzzing about it! There was a really great response with 8 – 10 people taking an active part throughout and some lurkers and people whos tarted off. There was interest from the USA and Canada, a participant from India and following on the Storify has been viewed over 40 times – not bad going!
I’m now putting together the artwork and questions for the second event on 20th October and hope it will continue to grow – there have been plenty of new followers so hopefully it will be bigger and better!
So last night was the first #IBDHour over on Twitter. After a slow start we had 5 or 6 people answering all the questions, and a few other lurkers liking and RTing.
If you missed it, you can see the whole thing through the magic of Storify here.
Next one is on 20th October. If you took part, let me know what you thought, and what topics you’d like to discuss in the future!