#IBDHour July 2017 – Support Groups

Here are the questions for tonight’s #IBDHour – follow on Twitter @IBDHour

Q1 Please introduce yourself (you can share your diagnosis if you wish) and say how you are today

Q2 Do you access any online groups for support – and what support do they offer?

Q3 Have you attended a real life group or event organised by an IBD organisation? If not, why not?

Q4 Is there a need for real life support groups? What would they look like?

Q5 @CrohnsColitisUK are clear they have local groups to raise awareness and fundraise, would you like them to offer more?

Q6 So much of life is online now – what is the benefit of real life contact?

Q7 What role should hospitals have in offering support? Should it just be to individuals or groups?

#IBDHour June 2017 – Posititivity

Here are the questions for this months IBD Hour!

Q1 Please introduce yourself (you can share your diagnosis if you wish) and share a positive from the last month

Q2 What has been your proudest achievement since your diagnosis?

Q3 IBD can be very negative – what do you do to stay positive?

Q4 When you are feeling down, have you got a ‘go to’ activity, food or drink to pick you up?

Q5 Have you got a person in your life who helps you remain positive?

Q6 For people who struggle to be positive, what advice would you give them?

Q7 Let’s finish with a positive thought, or something coming up for you in the next month

Do come and join us on Twitter at 8pm UK time on 15th June – search the #IBDHour

World IBD Day 2017

Happy World IBD Day everyone! It’s World IBD Day today (19th May) so you’ll hopefully see lots of purple and various media coverage about the conditions. I’m always happy to answer questions, but it is worth sharing these from Crohn’s & Colitis UK

what-you-need-to-know-a4

infographic

Which annoyingly I don’t know how to embed…

Anyway, in July my family and I are goign to be raising money for Crohn’s & Colitis UK by taking part in there WalkIT event in Bristol – if you’d like to sponsor us, you can do so here. The charity produce great literature about IBD, as well as funding research into the conditiona nd treatments. They also campaign for more IBD Nurses and better singage on disable toilets, among other things.

How are you?

I’m putting together a new poem about what people with IBD or any chronic or invisible illness really mean when they say ‘I’m fine’ in response to the question in the title. If you would like to get involved please comment or message me!

Guest Blog: Creating #IBDHour

A post I wrote for my social media mentor about #IBDHour

naturally social

Towards the end of last year I had to pleasure of being contacted by someone who had an idea, a thought and a passion…but needed to understand how to harness social to deliver it. Richard became a mentoring client of mine and over the course of 4 weeks we looked at goals, channels and approaches. What would be best to get him there; what could be dropped, parked or developed. One of the main things that came out of our initial meeting was the potential (and desire) for Richard to become a thought leader in the IBD / health sector. As a sufferer it was something he had begun blogging about and was actually directing some of his creative aspirations around spoken word poetry and performance.

A great way to position yourself as a thought leader in any sector is to take part in, and (better yet!) establish, twitter hours…

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