#IBDHour September 2017

On our first birthday Jenna Farmer is posing the questions as follow:

Q1 Please introduce yourself (you can share your diagnosis if you wish) and tell us how your summer was!

Q2 There are so many different diets out there, do you follow a strict diet and does it make a difference to your symptoms?

Q3 What are your ‘trigger foods’ that make your IBD worse?

Q4 On the end of the spectrum, what’s your go to food in a flare?

Q5 Do you think there is enough support with discussing diet and IBD-such as access to dieticians?

Q6 What’s your biggest worry about the diet you are on? E.g missing out on a certain food group or nutrient?

Q7 Low residue and low Fodmap diets are becoming popular-but have drawbacks. What are your experiences with them?

The Other Side

Interesting to think about the other side

GP and Human

You see ‘a GP;’ a role who is there at your service to sort out your healthcare needs.

WHO is on the other side? Do you know? Can you see?

*****

What do you see? You had to wait to be seen. This annoyed you. What on earth is the GP doing? You grumble as you go in to be seen.

What is the other side? Patients keep arriving every 10 minutes over and over all day long. Your GP is trying to keep to time but people keep coming in with lists, complex issues and mental health problems which can’t be done in the allocated time. The GP knows you don’t like having to wait. She feels guilty about this and stressed by it. She apologises even though it’s not her fault. The GP is adding ‘catch-up’ slots in to try and prevent patients having to sit in the…

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#IBDHour July 2017 – Support Groups

Here are the questions for tonight’s #IBDHour – follow on Twitter @IBDHour

Q1 Please introduce yourself (you can share your diagnosis if you wish) and say how you are today

Q2 Do you access any online groups for support – and what support do they offer?

Q3 Have you attended a real life group or event organised by an IBD organisation? If not, why not?

Q4 Is there a need for real life support groups? What would they look like?

Q5 @CrohnsColitisUK are clear they have local groups to raise awareness and fundraise, would you like them to offer more?

Q6 So much of life is online now – what is the benefit of real life contact?

Q7 What role should hospitals have in offering support? Should it just be to individuals or groups?

#IBDHour June 2017 – Posititivity

Here are the questions for this months IBD Hour!

Q1 Please introduce yourself (you can share your diagnosis if you wish) and share a positive from the last month

Q2 What has been your proudest achievement since your diagnosis?

Q3 IBD can be very negative – what do you do to stay positive?

Q4 When you are feeling down, have you got a ‘go to’ activity, food or drink to pick you up?

Q5 Have you got a person in your life who helps you remain positive?

Q6 For people who struggle to be positive, what advice would you give them?

Q7 Let’s finish with a positive thought, or something coming up for you in the next month

Do come and join us on Twitter at 8pm UK time on 15th June – search the #IBDHour

World IBD Day 2017

Happy World IBD Day everyone! It’s World IBD Day today (19th May) so you’ll hopefully see lots of purple and various media coverage about the conditions. I’m always happy to answer questions, but it is worth sharing these from Crohn’s & Colitis UK

what-you-need-to-know-a4

infographic

Which annoyingly I don’t know how to embed…

Anyway, in July my family and I are goign to be raising money for Crohn’s & Colitis UK by taking part in there WalkIT event in Bristol – if you’d like to sponsor us, you can do so here. The charity produce great literature about IBD, as well as funding research into the conditiona nd treatments. They also campaign for more IBD Nurses and better singage on disable toilets, among other things.