So I’ve got me some badges made to promote/ suppprt the blog and IBDHour – once I’ve worked out postage costs they will be available, so if you like what you read then please consider buying one!
Here are the questions for tonight’s #IBDHour – follow on Twitter @IBDHour
Q1 Please introduce yourself (you can share your diagnosis if you wish) and say how you are today
Q2 Do you access any online groups for support – and what support do they offer?
Q3 Have you attended a real life group or event organised by an IBD organisation? If not, why not?
Q4 Is there a need for real life support groups? What would they look like?
Q5 @CrohnsColitisUK are clear they have local groups to raise awareness and fundraise, would you like them to offer more?
Q6 So much of life is online now – what is the benefit of real life contact?
Q7 What role should hospitals have in offering support? Should it just be to individuals or groups?
Here are the questions for this months IBD Hour!
Q1 Please introduce yourself (you can share your diagnosis if you wish) and share a positive from the last month
Q2 What has been your proudest achievement since your diagnosis?
Q3 IBD can be very negative – what do you do to stay positive?
Q4 When you are feeling down, have you got a ‘go to’ activity, food or drink to pick you up?
Q5 Have you got a person in your life who helps you remain positive?
Q6 For people who struggle to be positive, what advice would you give them?
Q7 Let’s finish with a positive thought, or something coming up for you in the next month
Do come and join us on Twitter at 8pm UK time on 15th June – search the #IBDHour
Happy World IBD Day everyone! It’s World IBD Day today (19th May) so you’ll hopefully see lots of purple and various media coverage about the conditions. I’m always happy to answer questions, but it is worth sharing these from Crohn’s & Colitis UK
Which annoyingly I don’t know how to embed…
Anyway, in July my family and I are goign to be raising money for Crohn’s & Colitis UK by taking part in there WalkIT event in Bristol – if you’d like to sponsor us, you can do so here. The charity produce great literature about IBD, as well as funding research into the conditiona nd treatments. They also campaign for more IBD Nurses and better singage on disable toilets, among other things.
I’m putting together a new poem about what people with IBD or any chronic or invisible illness really mean when they say ‘I’m fine’ in response to the question in the title. If you would like to get involved please comment or message me!